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Kaisy Lynn “KK” Knott


DIPG: December 2016 – September 2018

Forever Age: 13

KK and Kayne were diagnosed around the same time frame in 2016. Each of them kept up with the other over social media, motivating and inspiring each other along their separate but all too similar journeys. After 21 months of living with DIPG, KK passed away in much the same way that she lived her life: fearless, strong, and determined to do so on her terms. She was surrounded by family and close friends. 

Her inner drive to talk with the congressional leaders and office staff in April 2018 on Capitol Hill in Washington, DC about what it is like to live with DIPG after just turning 13 was jaw-dropping. KK was advocating for May 17th to be National DIPG Awareness Day meeting with members of Senate and the House of Representatives.


Her family did everything they could to get her the best treatments inside and outside the United States and here she was in Washington, DC making bold statements of her own. Taking a stand; being physically present to show them was even more impactful.

Fighting like a warrior, KK kicked butt every second of the way. Words cannot describe how much we will miss her. We will never forget!


KK's Facebook Page

Thank you for choosing to donate to the Cannonballs for Kayne Foundation.100% of this donation, after credit card processing fees, goes directly towards aiding families in financial distress.


Help us SKIP the FEES: If you would like to make a donation by mail, please send a check to Cannonballs for Kayne Foundation; P.O. Box 1738, Ormond Beach, FL 32175 and write the person’s name in the memo.

The family receives notification of all donations made to this honor fund.

Your gift honoring KK will MAKE WAVES for DIPG!

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