DIPG: May 2019 – Present
Jace is a 20-year-old college student from Kansas. Jace is majoring in business economics and pre-law. He loves a good time, good debate and good adventure. Jace’s mantra during this DIPG journey has been “I can’t die, I’m busy.” It is Jace’s desire to provide impact on earth by speaking out about the need for DIPG awareness, shared data and research funding for cures. He recognizes the many blessings in this journey and has put his faith in God.
Two weeks following radiation, Jace visited 32 house and senate offices on Capital Hill advocating for DIPG awareness. He has been a panelist at a National Institute of Health meeting speaking about patient access to genomic data. In addition, Jace has been providing his perspective to founder Adam Resnick of the Children’s Brain Tumor Tissue Consortium and the team at Oncoeutics regarding expanded access to ONC201, treatment trials of ONC206 and the need for FDA approval of ONC201.
Thank you for choosing to donate to the Cannonballs for Kayne Foundation.100% of this donation, after credit card processing fees, goes directly towards DIPG research.
Help us SKIP the FEES: If you would like to make a donation by mail, please send a check to Cannonballs for Kayne Foundation; P.O. Box 1738, Ormond Beach, FL 32175 and write the person’s name in the memo.
The family receives notification of all donations made to this honor fund.
Your gift honoring Jace will MAKE WAVES for DIPG!