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  • Only 4% of federal funding goes toward childhood cancer research funding for all combined cancers.

  • The prognosis for children diagnosed with DIPG is 6-12 months.

  • Over 300 children in the US are diagnosed with DIPG each year.

  • The “standard of care” remains 6 weeks of radiation followed by experimental clinical trials of chemotherapy and other treatments.

  • This care has not changed in over 50 years. Neil Armstrong’s daughter, Muffy, had the same cancer and the same treatment in 1962.

  • The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act is the most comprehensive childhood cancer bill ever taken up by Congress. It would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences and enhance the quality of life for childhood cancer survivors. 

Kayne Finley at The State Capitol in Frankfort, Kentucky was the featured speaker of Gov. Matt Bevin's during the Brain Tumor Awareness Month and DIPG Awareness Day Proclamation Ceremony.

Photo: May 19, 2017.

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